It's October 2021 and my son's direct payments for social care have stopped abruptly. My son is profoundly disabled with multiple complex conditions and he gets support for social care in the form of money. This is because Haringey are unable to provide the services he needs. So the money is instead of the services and we use it for social care support like personal care, home help and social activities. The money has already been spent on his summer play scheme and we are in a panic as to where we are going to find the near enough thousand pounds we need to pay for 10 days of daytime play scheme.
We complain.
We get an email back written jointly by two Haringey Children's Services Assistant Directors, Bev Hendricks and Jackie Difolco.
The payments are reinstated and the Assistant Directors assure us:
They two Children's Services Assistant Directors also said that Zack's case would go to transition panel on 2nd November 2021 (between his 16th and 17th birthday)
None of this happens.
According to information on the Haringey website, a 'Continuing Health Care' assessment by nurses from Haringey's Clinical Commissioning Group would be undertaken at aged 17.5.
This did not happen.