An apology: SEND is nowhere near as bad as NHS-funded Continuing Health Care
- By Brian Leveson
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- 25 Mar, 2025
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We are SHOCKED the NHS is simply throwing away tax-payers money!
How bad is bad?
Agreements mean nothing, words change meaning, threats, bullying and interruptions are all business as usual when we deal with the North Central London Integrated Care Board Continuing Health Care team.
We are pretty much used to the behaviour of Haringey SEND department and have very low expectations around that and have developed strategies to cope with the behaviour.
Twenty years of experience (forty years if you think there are two of us) dealing with the maladministration of Haringey Council was no preparation for this NHS team:
Twenty years of experience (forty years if you think there are two of us) dealing with the maladministration of Haringey Council was no preparation for this NHS team:
- The NHS team ignores emails from the Local Member of Parliament and the Secretary of State for Foreign, Commonwealth and Development Affairs, David Lammy (good luck on the global stage)
- Six weeks ago the NHS sent us a care plan for holiday care (15 hours 1-2-1 plus 7 hours 2-12-1 daily
- Last night threatened us saying we cannot access these care arrangement because they have 'no planning' for said arrangements.
- Although the NHS have commissioned 150 hours of care a week with a Nursing Agency, I checked this morning. with the Director of Nursing at the agency.
About 3 or 4 times a year we get the euphemistic message 'Parents please note we have put a letter in your child's bag' - its a world away from how a child's death was handled in my child's first school
More of a trial by ordeal than a well organised clearly set out administrative process for moving the care of vulnerable young adults from Haringey's Children's Services to Adult Services. We have been failed at every stage of the process.
Never EVER get on the bus without a camera running if you need the priority wheelchair space
The reality of using a London Bus in the teeming rain on a Sunday afternoon is no joke when the parents of a paraplegic person in a wheelchair clash with the self-entitled buggy-pushing parents of toddlers.
At 3pm today I received some barefaced lies from Haringey Council Adult Social Care in response to a photograph I published online yesterday and the media interest it generated
Haringey SEND Transport are insisting that a 17 year old minibus with no air conditioning is a suitable vehicle to transport my paraplegic son in this heatwave. The appalling conditions inside the minibus inside the bus is something they knew about last summer, yet they have to date done nothing whatsoever provide a suitable minibus this year nor appropriately mitigate the temperatures inside the minibus.The conditions inside the minibus are so bad that they triggered multiple seizures during the heatwave as my son has epilepsy, which they SEND transport department know about and they also know that they are triggered by heat.It is not just son who is impacted: last year we know of one child who died on Haringey SEND Transport in the summer heatwave and another who had seizures.
I am simply asking a question - are we all absolutely certain that the road closure / travel restrictions (commonly know as LTNs) placed on some of the most severely disabled people who are wholly reliant on cars are absolutely necessary
Haringey's road closures exemptions policy for disabled people is not fit for purpose, unduly burdensome and intrusive - it's time to stand up against the pro-LTN lycra-clad cycling bullies
Is the argument for and against exemptions for disabled people in Low Traffic Neighbourhoods really a case of GOOD versus EVIL?
Letters from Labour Grandees and survey results from Haringey Council show people who opposed LTNs are women, elderly and disabled. Yet Peray Ahmet has described anti-LTN people as homophobic, islamophobic, sexist, racist and xenophobic.
