Presentation for Whittington Health: Estates and Services Task and Finish Panel 23rd February 2021
- By Brian Leveson
- •
- 23 Feb, 2021
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Whittington Health Consultation on moving the Child Development Centre from St Ann’s
We are concerned about the consultation process as well as the relocation
Our concerns fall into two broad categories and are about the consultation and the relocation
Consultation
Thanks to a passing remark by Councillor Zena Brabazon (who happened to be doing some casework for us - YAY ZENA!!), we found out about this consultation. Following that conversation we wrote our blog. Our understanding is that after that blog was written, other parents were then invited to this meeting by happenchance. And again, it is Councillor Brabazon who felt that given our 16 years of experience of going to all three sites (St Ann's, Tynemouth Road and Bounds Green,), who thought it a good idea we attend this evening.
We are always very grateful to Councillor Brabazon for the help she gives to us. Sometimes she has to tell us things that are hard to hear. She once observed to me that she felt that I was in trauma. I happened to have just read a paper on parents of children with cerebral palsy and post traumatic stress disorder. The paper suggested that we did. I was amazed at the timeliness of her observation. We have talked further and got to know each other better. We have a very honest relationship and I am extremely grateful that she has persevered and worked so much with us and for us.
Reference : https://www.redbookmag.com/life/mom-kids/a13149944/parents-of-disabled-children-can-develop-ptsd/
https://themighty.com/2019/06/stress-ptsd-parents-kids-disabilities/
https://journals.sagepub.com/doi/abs/10.1177/0883073820909617
Reference : https://www.redbookmag.com/life/mom-kids/a13149944/parents-of-disabled-children-can-develop-ptsd/
https://themighty.com/2019/06/stress-ptsd-parents-kids-disabilities/
https://journals.sagepub.com/doi/abs/10.1177/0883073820909617
Guidance
Please refer to the following organisations regarding good practice and legal requirements.
1.NHS
Guidance link: https://www.england.nhs.uk/participation/involvementguidance/
2.SEND
Code of Practice link: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/3988...
3.Department
for Education Guidance
in Home
to School
Travel
Guidance link: https://consult.education.gov.uk/home-to-school-transport-and-admissions-team/home-to-school-travel-...
4.Haringey’s
Consultation Charter link: https://www.haringey.gov.uk/sites/haringeygovuk/files/consultation_charter.pdf
Not sure that the case for moving based in the need for less clinical space and the condition and position of the buildings has been made. Statements have been made, that aren't backed up with facts, examples are given in the slide below
There has been limited engagement to users who used St Ann's last year (during lockdown) and users who will be impacted elsewhere have not been consulted
The questionnaires do not have any questions relating to disability and disabled users
Location
You could probably do with a checklist of infrastructure needed by disabled users such as enough disabled parking for all users and Changing Places standard toilets
Air pollution seems worse at Tynemouth Road - is this the sort of place vulnerable children should have to go to?
Getting there and standing traffic in an air known to have levels of high air pollution
More about facilities and different needs
Other users of all the sites also need to be involved. Can you imagine someone new moving into your house and no one asking you if that ok with you?
If you thought SEND was bad - the NHS is seemingly prepared to throw away money to private companies
About 3 or 4 times a year we get the euphemistic message 'Parents please note we have put a letter in your child's bag' - its a world away from how a child's death was handled in my child's first school
More of a trial by ordeal than a well organised clearly set out administrative process for moving the care of vulnerable young adults from Haringey's Children's Services to Adult Services. We have been failed at every stage of the process.
Never EVER get on the bus without a camera running if you need the priority wheelchair space
The reality of using a London Bus in the teeming rain on a Sunday afternoon is no joke when the parents of a paraplegic person in a wheelchair clash with the self-entitled buggy-pushing parents of toddlers.
At 3pm today I received some barefaced lies from Haringey Council Adult Social Care in response to a photograph I published online yesterday and the media interest it generated
Haringey SEND Transport are insisting that a 17 year old minibus with no air conditioning is a suitable vehicle to transport my paraplegic son in this heatwave. The appalling conditions inside the minibus inside the bus is something they knew about last summer, yet they have to date done nothing whatsoever provide a suitable minibus this year nor appropriately mitigate the temperatures inside the minibus.The conditions inside the minibus are so bad that they triggered multiple seizures during the heatwave as my son has epilepsy, which they SEND transport department know about and they also know that they are triggered by heat.It is not just son who is impacted: last year we know of one child who died on Haringey SEND Transport in the summer heatwave and another who had seizures.
I am simply asking a question - are we all absolutely certain that the road closure / travel restrictions (commonly know as LTNs) placed on some of the most severely disabled people who are wholly reliant on cars are absolutely necessary
Haringey's road closures exemptions policy for disabled people is not fit for purpose, unduly burdensome and intrusive - it's time to stand up against the pro-LTN lycra-clad cycling bullies
Is the argument for and against exemptions for disabled people in Low Traffic Neighbourhoods really a case of GOOD versus EVIL?
