Transition Diary - Dear Diary, I am overwhelmed...
- By Brian Leveson
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- 02 Nov, 2021
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Dear Diary - I haven't a clue. So, I am blogging, right now as best I've worked it out, then I'll catch up on the bits that I remember over the next few weeks and then I'll blog in real time about moving from children's services to adult services - aka "TRANSITIONS"
Dear Diary, I watched this video from "SENlegal" and I realised, I have to get my act together
Sign up for more at: senlegal.co.uk/legal-webinars
Right now I am feeling overwhelmed.
Our movement from children's services to adult services seems confused and interrupted by Covid and crazy disorganised.
I reckon that there are bout 4 areas I meed to be thinking about - and it all seems to fall on me because we don't have a social worker support because there are no safeguarding concerns and that's they way it works here in Haringey and this is what they've told me.
I have listed the 4 broad areas that I think that I need to think about in the picture below. I reckon that I need to think about stuff about his state benefits and support like moving from 'Disability Living Allowance' to a 'Personal Independent Payment'. Some of this has happened already and I'll write up about that next.
Then there is the support from Haringey SEND and the maintenance of the Education, Health and Care Plan (EHCP). That does not seem to have happened as it should have done in accordance with whats in the Transition's Policy.
We are having more medical appointments right now. Partly because the lockdown ended and the NHS is 'open' again and partly because the paediatric (children's) services are gearing up for a a handover to the adult doctors.
And then there is all the stuff about Mental Capacity, Power of Attorney and Deputyships. I have no idea where to start with that, so I have attended a seminar by some lawyers (who also so YouTube videos) and have arranged an appointment.
It's blowing my mind - Night night, dear Diary.
The Difficult Parent
Our movement from children's services to adult services seems confused and interrupted by Covid and crazy disorganised.
I reckon that there are bout 4 areas I meed to be thinking about - and it all seems to fall on me because we don't have a social worker support because there are no safeguarding concerns and that's they way it works here in Haringey and this is what they've told me.
I have listed the 4 broad areas that I think that I need to think about in the picture below. I reckon that I need to think about stuff about his state benefits and support like moving from 'Disability Living Allowance' to a 'Personal Independent Payment'. Some of this has happened already and I'll write up about that next.
Then there is the support from Haringey SEND and the maintenance of the Education, Health and Care Plan (EHCP). That does not seem to have happened as it should have done in accordance with whats in the Transition's Policy.
We are having more medical appointments right now. Partly because the lockdown ended and the NHS is 'open' again and partly because the paediatric (children's) services are gearing up for a a handover to the adult doctors.
And then there is all the stuff about Mental Capacity, Power of Attorney and Deputyships. I have no idea where to start with that, so I have attended a seminar by some lawyers (who also so YouTube videos) and have arranged an appointment.
senlegal.co.uk/legal-webinars
I will blog as it all happens, my 'lived' experience as I am living it.It's blowing my mind - Night night, dear Diary.
The Difficult Parent
The 4 broad areas that I think I need to be thinking about
State benefits
Support for the Education, Health and Care plane from Haringey Special Educational Needs and Disability Service (SEND)
Hospital Stuff
Power of attorney?
If you thought SEND was bad - the NHS is seemingly prepared to throw away money to private companies
About 3 or 4 times a year we get the euphemistic message 'Parents please note we have put a letter in your child's bag' - its a world away from how a child's death was handled in my child's first school
More of a trial by ordeal than a well organised clearly set out administrative process for moving the care of vulnerable young adults from Haringey's Children's Services to Adult Services. We have been failed at every stage of the process.
Never EVER get on the bus without a camera running if you need the priority wheelchair space
The reality of using a London Bus in the teeming rain on a Sunday afternoon is no joke when the parents of a paraplegic person in a wheelchair clash with the self-entitled buggy-pushing parents of toddlers.
At 3pm today I received some barefaced lies from Haringey Council Adult Social Care in response to a photograph I published online yesterday and the media interest it generated
Haringey SEND Transport are insisting that a 17 year old minibus with no air conditioning is a suitable vehicle to transport my paraplegic son in this heatwave. The appalling conditions inside the minibus inside the bus is something they knew about last summer, yet they have to date done nothing whatsoever provide a suitable minibus this year nor appropriately mitigate the temperatures inside the minibus.The conditions inside the minibus are so bad that they triggered multiple seizures during the heatwave as my son has epilepsy, which they SEND transport department know about and they also know that they are triggered by heat.It is not just son who is impacted: last year we know of one child who died on Haringey SEND Transport in the summer heatwave and another who had seizures.
I am simply asking a question - are we all absolutely certain that the road closure / travel restrictions (commonly know as LTNs) placed on some of the most severely disabled people who are wholly reliant on cars are absolutely necessary
Haringey's road closures exemptions policy for disabled people is not fit for purpose, unduly burdensome and intrusive - it's time to stand up against the pro-LTN lycra-clad cycling bullies
Is the argument for and against exemptions for disabled people in Low Traffic Neighbourhoods really a case of GOOD versus EVIL?
