Concern: Haringey families of disabled children are NOT getting the support they need in lock-down

  • By Brian Leveson
  • •
  • 31 May, 2020
  • •

At the moment, Haringey Council are spending money on services that people are not receiving in lock-down.  Those services are respite in the form of short breaks for children with disabilities.  It's not just us, families have contacted us in frustration that they cannot spend respite money to meet needs. We did the reasonable thing - we contacted Haringey, over and over and over again - who sent us of a response that does little to add clarity to the situation

The government have issues the following Coronavirus (COVID-19) guidance: guidance for people receiving direct payments: This guidance is aimed at people who receive support via direct payments through personal budgets and personal health budgets, and local authorities, clinical commissioning groups (CCGs) and providers who support and deliver care via direct payments. It sets out key messages to support planning and help slow the transmission of the coronavirus (COVID-19) as the outbreak progresses across the country.

We keep raising this issue - people with disabilities are disproportionately impacted by the lock-down - it is important that the support is in place to meet additional needsWe keep raising this issue - people with disabilities are disproportionately impacted by the lock-down - it is important that the support is in place to meet additional needs

In the interest of transparency, we wrote an open letter to the Haringey Chief Executive, published again below

With no clear response, we made a formal complaint - In the interest of transparency published again below: With no clear response, we made a formal complaint - In the interest of transparency published again below: 

Meeting minutes from the 24.04.20 co-production meeting - action* 3.5 : NJ to work with colleagues to ensure revised guidance taking account of  Covid-19  impacts  and  lockdown  restrictions  is  available  to  parents  of disabled children, on the SEND webpages and on the Local Offer as a priority

Here is the reply we got last week - In the interest of transparency published again below: 

Here is why we are unsatisfied with this reply- In the interest of transparency published again below: 

Here is what neighbouring boroughs have done:

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