Time wasters
- By Brian Leveson
- •
- 17 Aug, 2022
- •
The Leader of Haringey Council's pledge that collaboration will be a crucial component moving forwards - Fed up with having mine (and others) time wasted, The Difficult Parent is calling out co-production in Haringey
A change of focus
Dear All,
Sorry we haven't been in touch for so long, but a complete change of focus for the Difficult Parent is needed.
Moving forward we will be looking more at 2 areas:
- Calling out 'co-production' in Haringey
- Telling our own story
Calling out 'coproduction' in Haringey
In the last year we have experienced
- the dreadful lack of consultation on Lower Traffic Neighbourhoods and the production of an ineffective exemptions policy that is not fit for purpose
- A summit on inclusion in parks at an inaccessible venue were able bodied providers of 'services for the disabled' did not call out the lack of inclusion of disabled people in a 'summit' about inclusion in parks
- A coproduced Haringey SEND Transport Bus Stand that Haringey SEND Transport will not use because there 'usual practices' do not really permit it's use on the grounds of unacceptable levels of safety issues.
Telling our own story
Our life has been turned upside down by the hot weather and we do not have any time to waste in meetings held without clarity of purpose, that do not produce effective outcomes other than more meetings so that the officers and politicians of Haringey Council can create a paper trail to say they worked with citizens to co-produce services that do not meet needs or worse result in direct threats to our child's well-being or service provision and our own physical and mental health.
A more efficient use of our time is simply to tell our story, as it happens.
The Difficult Parent
If you thought SEND was bad - the NHS is seemingly prepared to throw away money to private companies
About 3 or 4 times a year we get the euphemistic message 'Parents please note we have put a letter in your child's bag' - its a world away from how a child's death was handled in my child's first school
More of a trial by ordeal than a well organised clearly set out administrative process for moving the care of vulnerable young adults from Haringey's Children's Services to Adult Services. We have been failed at every stage of the process.
Never EVER get on the bus without a camera running if you need the priority wheelchair space
The reality of using a London Bus in the teeming rain on a Sunday afternoon is no joke when the parents of a paraplegic person in a wheelchair clash with the self-entitled buggy-pushing parents of toddlers.
At 3pm today I received some barefaced lies from Haringey Council Adult Social Care in response to a photograph I published online yesterday and the media interest it generated
Haringey SEND Transport are insisting that a 17 year old minibus with no air conditioning is a suitable vehicle to transport my paraplegic son in this heatwave. The appalling conditions inside the minibus inside the bus is something they knew about last summer, yet they have to date done nothing whatsoever provide a suitable minibus this year nor appropriately mitigate the temperatures inside the minibus.The conditions inside the minibus are so bad that they triggered multiple seizures during the heatwave as my son has epilepsy, which they SEND transport department know about and they also know that they are triggered by heat.It is not just son who is impacted: last year we know of one child who died on Haringey SEND Transport in the summer heatwave and another who had seizures.
I am simply asking a question - are we all absolutely certain that the road closure / travel restrictions (commonly know as LTNs) placed on some of the most severely disabled people who are wholly reliant on cars are absolutely necessary
Haringey's road closures exemptions policy for disabled people is not fit for purpose, unduly burdensome and intrusive - it's time to stand up against the pro-LTN lycra-clad cycling bullies
Is the argument for and against exemptions for disabled people in Low Traffic Neighbourhoods really a case of GOOD versus EVIL?
