SEND National Crisis Marches - All over the UK
- By The Difficult Parent
- •
- 29 May, 2019
- •
Thursday 30th May 2019 we'll be marching in alongside other SEND parents in a day of national action. Join us for the handing in of the petition at 12 noon at Downing Street or the rally at 1pm in Parliament Square
What's it all about?
***If you are attending the London March could I please ask that you confirm your attendance on both the National event page and this local page too. (link below) Thank you #SendNationalCrisis
#ourkidsmatter
***
https://www.facebook.com/events/1753604738077454/?ti=cl
The #SENDNationalCrisis campaign are demanding change for the most vulnerable children and young people in our society.
OVERRIDING OBJECTIVES
The needs of the child to always be placed at the centre of all decisions and actions. Legal and financial accountability for local authorities in their treatment of young people with SEND and their families. An end to the culture which encourages the blaming, shaming and dismissal of parents of young people with SEND
FUNDING
Funding to be increased to realistic amounts per young person, to be provided directly from Central Government and to be ring-fenced; Assessment to be carried out independently of the funding body
DIAGNOSIS/ASSESSMENT
A recognised pathway for diagnosis for all shades of neuro-diversity, which is the same nationwide and which gets young people in front of experienced diagnosticians within a maximum time of 6 months from first referral. An end to the nonsensical distinction between “educational” difficulties and “medical” difficulties
ACCOUNTABILITY
One central point for all aspects of legal issues to have power over Education Health and Social Care; All policies to be consistent across the country with clear guidelines and rules surrounding conduct by local authorities and expectations in terms of parent partnership and enforcement of procedures; For anyone providing false information to be prosecuted and to be fined for failing to support the law, applying to all professionals involved in the process; A recourse other than costly Judicial Review when local authorities fail to follow orders of the Tribunal; Free reinforcement of EHCP plans where evidence can be provided to prove a professional has acted not in the best interests of the young person or other misconduct;
SUPPORT FOR FAMILIES
A board of parent governors with enforcement powers to oversee parental/ carer treatment and inclusion during the SEN/ EHCP process; Quality training for independent family support advisors; Legal aid and bank of independent professionals to reference and access pre-tribunal; Mandatory training on SEN law and funding for all SENCO and Heads; Parents to have a choice of what school is named in the EHCP and this to be considered and any refusals of schools to be clearly explained and reasons outlined in a formal document; Mandatory, nationally accredited training for those drafting EHCPs; Parental consultation and evidence for expenditure of national fund for each child
In London, speakers include:
https://www.facebook.com/events/1753604738077454/?ti=cl
The #SENDNationalCrisis campaign are demanding change for the most vulnerable children and young people in our society.
OVERRIDING OBJECTIVES
The needs of the child to always be placed at the centre of all decisions and actions. Legal and financial accountability for local authorities in their treatment of young people with SEND and their families. An end to the culture which encourages the blaming, shaming and dismissal of parents of young people with SEND
FUNDING
Funding to be increased to realistic amounts per young person, to be provided directly from Central Government and to be ring-fenced; Assessment to be carried out independently of the funding body
DIAGNOSIS/ASSESSMENT
A recognised pathway for diagnosis for all shades of neuro-diversity, which is the same nationwide and which gets young people in front of experienced diagnosticians within a maximum time of 6 months from first referral. An end to the nonsensical distinction between “educational” difficulties and “medical” difficulties
ACCOUNTABILITY
One central point for all aspects of legal issues to have power over Education Health and Social Care; All policies to be consistent across the country with clear guidelines and rules surrounding conduct by local authorities and expectations in terms of parent partnership and enforcement of procedures; For anyone providing false information to be prosecuted and to be fined for failing to support the law, applying to all professionals involved in the process; A recourse other than costly Judicial Review when local authorities fail to follow orders of the Tribunal; Free reinforcement of EHCP plans where evidence can be provided to prove a professional has acted not in the best interests of the young person or other misconduct;
SUPPORT FOR FAMILIES
A board of parent governors with enforcement powers to oversee parental/ carer treatment and inclusion during the SEN/ EHCP process; Quality training for independent family support advisors; Legal aid and bank of independent professionals to reference and access pre-tribunal; Mandatory training on SEN law and funding for all SENCO and Heads; Parents to have a choice of what school is named in the EHCP and this to be considered and any refusals of schools to be clearly explained and reasons outlined in a formal document; Mandatory, nationally accredited training for those drafting EHCPs; Parental consultation and evidence for expenditure of national fund for each child
In London, speakers include:
- Siena Castellon
- Alfie Scanlon
- Emma Parker
- Max Green
- Kevin Courtney
- Dean Beadle
- Dr Carrie Grant
- Dr Anna Kennedy, OBE
- Tania Tirraoro
There are marches all over the UK
London Details
If you thought SEND was bad - the NHS is seemingly prepared to throw away money to private companies
About 3 or 4 times a year we get the euphemistic message 'Parents please note we have put a letter in your child's bag' - its a world away from how a child's death was handled in my child's first school
More of a trial by ordeal than a well organised clearly set out administrative process for moving the care of vulnerable young adults from Haringey's Children's Services to Adult Services. We have been failed at every stage of the process.
Never EVER get on the bus without a camera running if you need the priority wheelchair space
The reality of using a London Bus in the teeming rain on a Sunday afternoon is no joke when the parents of a paraplegic person in a wheelchair clash with the self-entitled buggy-pushing parents of toddlers.
At 3pm today I received some barefaced lies from Haringey Council Adult Social Care in response to a photograph I published online yesterday and the media interest it generated
Haringey SEND Transport are insisting that a 17 year old minibus with no air conditioning is a suitable vehicle to transport my paraplegic son in this heatwave. The appalling conditions inside the minibus inside the bus is something they knew about last summer, yet they have to date done nothing whatsoever provide a suitable minibus this year nor appropriately mitigate the temperatures inside the minibus.The conditions inside the minibus are so bad that they triggered multiple seizures during the heatwave as my son has epilepsy, which they SEND transport department know about and they also know that they are triggered by heat.It is not just son who is impacted: last year we know of one child who died on Haringey SEND Transport in the summer heatwave and another who had seizures.
I am simply asking a question - are we all absolutely certain that the road closure / travel restrictions (commonly know as LTNs) placed on some of the most severely disabled people who are wholly reliant on cars are absolutely necessary
Haringey's road closures exemptions policy for disabled people is not fit for purpose, unduly burdensome and intrusive - it's time to stand up against the pro-LTN lycra-clad cycling bullies
Is the argument for and against exemptions for disabled people in Low Traffic Neighbourhoods really a case of GOOD versus EVIL?
